May04
Super Charlie battling Neuroblastoma
Super Charlie was diagnosed with Neuroblastoma on 29th November 2015. At just 10 months old! Charlie has already endured 8 rounds of intensive chemotherapy in 70 days, A stem cell harvest which took 4 hours, a 6 hour major operation & numerous blood transfusions. Charlie is currently 21 days post stem cell transplant & has developed a serious and life threatening condition called VOD. He is very poorly at the moment but is trying so hard to smile through this terrible time. Charlie is currently receiving treatment at Great Ormond Street Hospital.
Please continue reading to hear Charlie's story, our pledge to his cause, and how you can help...
Charlie's mum, Claire explains how their nightmare unfolded:
"3 weeks before his diagnosis he developed a black eye, which I assumed he had bumped on some furniture. This got worse over the weeks so we took Charlie to our local GP who suggested a blood test. Two days later after his blood test Charlie was admitted to our local hospital and then transferred to Great Ormond Street. Charlie was diagnosed with Neuroblastoma on 29th November 2015
Over the next few days Charlie endured numerous tests, an Ultrasound, MRI, MIBG, Hickman Line insertion, bone marrow aspirates and a biopsy. He also needed emergency chemo as his disease was worsening before our eyes.
On Thursday 10th December after waiting for what seemed like forever we had our exact diagnosis.
Stage 4 MCYN amplified high risk Neuroblastoma.
Charlie had a primary tumour in his abdomen with bone, bone marrow, liver and lymph node involvement (metastasis) he also tumours behind his eyes.
The treatment for high risk Neuroblastoma is very intense and aggressive and will last about 18 months.
So far....
So far....
Charlie has endured 8 rounds of intensive chemotherapy in 70 days.
A stem cell harvest which took 4 hours.
A 6 hour major operation where fortunately 100% of his tumour was removed.
Charlie is currently 21 days post stem cell transplant. He has developed a serious and life threatening condition called VOD. He is very poorly at the moment but is trying so hard to smile through this terrible time.
A stem cell harvest which took 4 hours.
A 6 hour major operation where fortunately 100% of his tumour was removed.
Charlie is currently 21 days post stem cell transplant. He has developed a serious and life threatening condition called VOD. He is very poorly at the moment but is trying so hard to smile through this terrible time.
This is a very aggressive and rare form of cancer approximately 100 children aged 0-14 are diagnosed In the UK every year.
Only 1 in 2 children will survive this terrible disease. There is a 50% chance of relapse. At the moment there is Minimal treatment of this happens and Charlie's only chance of survival would be treatment abroad.
We have set up this page to raise money to help with expenses for Charlie, any future care he may need and to donate to Great Ormond Street Hospital and Clic Sargent, two charities who are invaluable to us and many others!"
Super Charlie earned his name by proving to be a real life superhero, fighting this awful disease and managing to keep a smile on his face. His courage and constant smile is truly inspirational. We continue to follow Charlie's journey and pledge our support in any way we can.
Please visit and share Charlie's fundraising page. Every donation helps, even if you can only spare £1 please do:
https://crowdfunding.justgiving.com/SuperCharlie
You can follow his journey on Facebook at:
https://www.facebook.com/groups/1729934850573407/
Another way to help Charlie, and many more like him is to Give Blood. To find a location and donation session near you please visit:
https://www.blood.co.uk
Or donate to Great Ormond Street Hospital:
www.gosh.org/Donate
KEEP SMILING & KEEP FIGHTING SUPER CHARLIE
Only 1 in 2 children will survive this terrible disease. There is a 50% chance of relapse. At the moment there is Minimal treatment of this happens and Charlie's only chance of survival would be treatment abroad.
We have set up this page to raise money to help with expenses for Charlie, any future care he may need and to donate to Great Ormond Street Hospital and Clic Sargent, two charities who are invaluable to us and many others!"
Super Charlie earned his name by proving to be a real life superhero, fighting this awful disease and managing to keep a smile on his face. His courage and constant smile is truly inspirational. We continue to follow Charlie's journey and pledge our support in any way we can.
Please visit and share Charlie's fundraising page. Every donation helps, even if you can only spare £1 please do:
https://crowdfunding.justgiving.com/SuperCharlie
You can follow his journey on Facebook at:
https://www.facebook.com/groups/1729934850573407/
Another way to help Charlie, and many more like him is to Give Blood. To find a location and donation session near you please visit:
https://www.blood.co.uk
Or donate to Great Ormond Street Hospital:
www.gosh.org/Donate
KEEP SMILING & KEEP FIGHTING SUPER CHARLIE